Lucy, Rheumatoid Arthritis - Patient
The following perspective represents both the emotional experiences and personal view of an individual clinical trial participant. These experiences and views are not necessarily typical of all clinical trial participants. Clinical trials are not treatment, but are a type of research that investigates experimental medications and may not demonstrate a benefit for participants.
Title: Lucy's Story 3:17 min
In this video, Lucy discusses her experience with Rheumatoid Arthritis and her decision to join a clinical trial.
"I have Rheumatoid Arthritis. I got it at a young age. It wasn’t hereditary, it was triggered by a virus when I was in high school. Within a matter of 3 months, I was bedridden.
For the most part, you can’t tell that I have it, unless you see my hands. My finger was so disfigured that I couldn’t hold a cup of coffee, or even a cup.
My rheumatologist was just amazing. And that goes across the board with rheumatologists, with surgeons, with primary care physicians.
Every time I went in [for a clinical trial visit] it was the same process: bloodwork, vitals, paperwork. They want you to be as safe as possible. As soon as they notice something is off, they will tell you. And you have the option of saying ‘ok, I’m out.’
Everything was my choice, and that's what I would tell anyone else. You have control.
If you decide that this is what you want to do, you have control. Having that control made me feel amazing.
If you think [a clinical trial] is a possibility and you want to learn more, by all means ask every question that you can. That’s what I did, so that I could make an educated – or as much of an educated - decision as possible."